Whirlwind of activity

Wow, it’s been a busy couple of weeks for #TeamEric.

Eric has had three doctor appointments in the past nine days. He also started his second round of chemotherapy on March 7. He takes 3000 mg (6 – 50 mg honkin’ big pills) of capecitabine with breakfast and dinner. He sees his Oncologist, Dr. Ian Schnadig, or his Nurse Practicioner, Tawna Pangborne every three weeks to look at his blood counts and see how he’s handling the chemo and any side effects. He seems to be tolerating it well, with exception of having the “blahs” most days. He just feels blah.

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Mark Whiteford, MD

The most pressing issue right now continues to be the pain Eric is experiencing. His surgeon, Dr. Mark Whiteford is fantastic and doesn’t mince words with us, even though we spend a lot of time laughing with him.

 

He’s concerned that the pain is still there this long after surgery. We  know that the anal fissure (graphic on the page) is still not healed, however he feels that pain should be gone since he has the ostomy. Sometime in the next week or two, he will be taking Eric back to the OR for a “look-see”. Perhaps there is something obvious causing the pain. He will give Eric another botox injection to relax the fissure and allow it to heal. As long as it’s there, he cannot reverse the ostomy .

Once he’s done that, we will map out the next course of action, which may include bringing a Pain specialist on board.

hosmer-danielle
One major piece of news we learned yesterday, is that the Pulmonologist that is the lead for Eric’s lungs is leaving practice to focus on her family. I will be starting a separate page with information on this, it’s a critical piece to Eric’s medical journey these past 5 years.

Dr. Danielle Hosmer  has been a part of our life for nearly 4 years and as far as we are concerned, she was instrumental in saving Eric when his lungs were bottoming out. She has been there when we had questions, when we had successes and failures and truly has been an amazing person to work with. She has two other associates that were a part of his care from time to time and we will discuss with her, where she feels his lungs will get the best care. It’s going to be a big loss for us as well as those suffering with Interstitial Lung Disease as there are so few around that understand it and are able to diagnose it. Please pray that we find a new physician that will fill her shoes well.

Ok, I think that catches us up. We have the Spaghetti Feed for Eric coming up on March 25th and our GoFundMe is moving along – THANK YOU! Please consider sharing the info with family and friends, the Support page give more information as to why this is so important to us.

 

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